Casey was stretched out in the recliner last night and was saying the names of her favorite Sesame Street characters. Elmo and Cookie Monster topped the list, but she named them all as she giggled about what color each one was. She really started laughing when I said that Big Bird was purple. When you have a child with autism, you make jokes however you can!
What caught my attention was that she called Elmo her friend. She has seen Elmo Live several times and firmly believes they are real people. She talks to each of her stuffed toys and laughs as she “hears” their answer. For some reason, I started thinking about friendships and felt sad. Many times, people with autism tend to have few friends.
Casey has never seemed to care about having friends. She’s always been “like me or don’t, I don’t care.” She is who she is and always seems to be happy with herself. Rob is different. When he was younger, he wanted everyone to like him. He wasn’t sure how to make that happen and never seemed to try to form friendships. He was lucky, though. There was a group of boys who made sure he was never alone and always had someone to play with.
Those boys stayed with him all the way through school. He still talks about them. Now, he has more of Casey’s attitude but he still hates to think anyone is upset with him. He gets really anxious until he feels they are no longer upset. I wonder if he misses those boys – or if he thinks they are still at the school, waiting for him.
Every parent wants their children to have friendships. People that they can play with and do things together. People with the same interests and that they can laugh with. When you have a child with autism, it can be so difficult. We hurt when they aren’t invited to birthday parties or when we can’t have a party for them because it’s not something they would enjoy.
Casey and Rob were lucky. They had cousins close to their age and Mandy’s friends always included them. It was only a few weeks ago that Rob named the group of them – Kelsey, Kenzie, Braeden, Ryan, Britanie, Troy and Evan. He laughed and talked about the pickles that Ryan had gotten him for his birthday one year. Sidewalk chalk was something Rob loved to do and this group would draw with him as long as he wanted them to. Whatever Casey wanted to do, they joined in with her as long as she was interested in company.
These kids have grown up, of course, but their friendship meant so much to me, Casey and Rob. The fact that both kids still talk about them shows how important they were to our family. They came to birthday parties and played in the pool with them. Were these “typical” friendships? Yes – and no. They reached out to Casey and Rob and were friends to them. Did they all go do things together? No, Casey and Rob weren’t able or interested in that.
All of this made me think. How is friendship defined? When we think of our friends, we think of people who like the same things we do – people that we want to spend time with – people we can talk to about anything. If we think of friends like that, Casey and Rob don’t have any. It makes me so sad to think about that. They have Mandy and Cory, of course, but still….
But then Casey tells me Elmo is her friend. And Rob says Bob is his friend. Tory is someone else they both call “friend.” A while ago, Rob said Grandpa Mack was his friend. Tracie, Bud, Amy, Jessica, Adam, Rita, Doug, Scott, Andrew, Tyler, Brandon, Seth – they are all people Casey and Rob say are their friends. The thing is, only Adam and Tyler are near their age. Some are staff at the workshop they work at. Others are a little older than them and they don’t see them away from work. They haven’t even seen Bud and Amy in years – but still, they are their friends.
They don’t hang out with them. They don’t have long phone conversations. But Casey and Rob say they are friends. They go on outings together. They go out for breakfast or lunch. Do they sit and visit for an hour? No, but they are excited to see each other – isn’t that what real friends do for us?
So maybe it’s my definition of friendship that needs to be changed. Maybe my vision of the friends I want my kids to have needs adjusted. I want them to have people in their lives that they can count on. Someone to have fun with. Someone to go places with. After all, how many young adults want to be with mom all the time?
I realized – they have that already. Rob was excited to tell me he jumped in the pool with Andrew. Casey giggles when she talks about Adam. I may not hear a lot of the details, but it’s enough to know they are with friends. Maybe not the kind of friends I have, but friends none the less.
It’s hard to think your child may be lonely. For some people with autism, friendships are important and they hurt when they feel as if they don’t have any. We need to do everything we can to help those people find someone to be their friend. Their friendship may not be like what we picture a friendship to be, but if your child is happy, isn’t that enough?
If your child wants a friend, invite a child to do an activity with your child that he/she enjoys. Keep the activity short and see how it goes. You don’t want your child to become overwhelmed. Invite the child to ask questions about why your child might do some of the things he/she does. Talk to your child’s teacher and ask if you can speak to the class when your child isn’t there. Explain to the kids what autism is and that it is hard for your child to make friends. Most children want to help others and might be excited to make a new friend.
You may need to redefine your idea of what a friendship is, just like I did. You may find that your child is perfectly happy to have someone play Legos in the same room without interacting. Maybe they just want someone to splash around in the pool with. Watch your child for clues on what they really want.
As for me, I’m going to be thankful for the people my kids consider friends. I’m going to enjoy every smile and every giggle as they tell me about their adventures in one or two word phrases. (sometimes, it takes weeks to hear the whole story, but it’s still great to hear!) I’m going to pray that their friends know how important they are in Casey and Rob’s lives. And I’m going to pray that they always have people they call friend in their life – even if it is a collection of stuffed toys!
